Glass woman from India and her 300 fractures (7 photos)
The dream of most girls is to be fragile and tender, bathed in care like a princess. But Dhanya Ravi, if she had a choice, would happily refuse such care.
Dhanya Ravi is from Bangalore and is 35 years old. She has known about her special diagnosis all her life, because it was diagnosed when the baby was only 56 days old.
The girl cried continuously, and her parents could not calm her down or understand the reason. Doctors found out that the child had a broken femur. From that moment on, the life of the Glass Woman, as Dhanya is called in her homeland, began, full of trials.
Types of osteogenesis
Ravi's diagnosis is osteogenesis imperfecta, a rare congenital genetic disease characterized by increased fragility and fragility of bones. During her life, Ravi consulted with several dozen specialists. But they couldn’t help the girl. Doctors only recorded another fracture, of which several could happen in one month. And in total she suffered more than three hundred of them.
But Dhanya learned to bear the pain with a smile on her face. After all, what upset her most was not the lack of ability to walk, but the experiences of her relatives, especially her mother.
The cause of the Glass Woman's fracture could have been any factor that is fleeting and meaningless for an ordinary person: a sharp noise of a car braking, a pressure cooker signal, just an unexpected sneeze. And it’s ready – another turning point.
The girl, naturally, did not attend school. But a neighbor woman came to her house for several years - a teacher who taught Dhanya everything that is included in the basic course. She categorically refused to take the money, for which Ravi is very grateful to her:
It costs 10 teachers. She came to my house every morning and taught me for 9 years. And she did all this for free, without demanding money from my parents. And she, among other things, taught me that you should always help others if it is within your capabilities.
The lack of opportunity to walk and play with friends was compensated for by her older brother, who took great care of her special sister, and dolls.
The most difficult thing about the Indian woman’s condition is not the pain or even the fractures. And changes in the body that provoke improperly fused bones. Because of them, muscles and internal organs are deformed. And nothing can be done about it.
But Dhanya remains optimistic. Probably because in her case the disease was diagnosed at an early stage and more or less adequate living conditions were provided: the girl was cared for taking into account the disease, and now she moves in an electric wheelchair. While many patients wait years for a diagnosis. And some people don’t even wait...
Dhanya is passionate about music, loves art and is actively involved in charity work. When she found out about a guy with a similar problem, she connected sponsors and raised the amount necessary for the operation.
The woman maintains a positive attitude and participates in television shows and programs, trying to provide other patients with as much information as possible about osteogenesis:
Now we are making every effort to carry out research. We are trying and trying to prevent the next generation from getting this terrible disease.